Charities

Equipment and Services

Caudwell Children

Caudwell Children is a charity that provides specialist equipment, treatment and therapies for sick and disabled children across the UK as well as our Destinations Dreams holiday for children (and their family) fighting life threatening conditions.

Newlife

This charity calls themselves the 'specialists for special children'. They offer:

Nurse Services

Just one call or email to a Newlife Nurse and in answering this we will begin to understand the needs of the child and family. Whatever the query we experienced and dedicated nurses will listen to the situation and then explain, what the possibilities are for Newlife to offer support and advice.

Equipment Grant Services

It is often during these early conversations that we identify a need such as equipment. If it’s information that is needed our nurses will supply and support. If it is a referral we will research and refer. If it’s equipment provision that’s needed we can often offer a grant and try to deliver the help they need – often within days.

Medical Research

Most parents ask ‘why me?’ ‘why my child?’ and we know medical research holds the key. This is why our links to sources of the latest research are crucial in keeping our Nurses up to date with new techniques in testing and both diagnostic and treatment advances. This knowledge comes directly from our own researchers and from leading researchers elsewhere in the UK and overseas.

Campaigns and Awareness

Many parents feel they have to battle to get the help they need and that they are very much alone. Our campaigning and awareness activities show them that we can help them have a voice on important issues and overcome their isolation.

Family Fund

The Family Fund helps families with severely disabled or seriously ill children and young people aged 17 and under to have choices and the opportunity to enjoy ordinary life.

We give grants for things that make life easier and more enjoyable for the disabled child, young person and their family, such as washing machines, driving lessons, computers and holidays.

Whizz Kidz

Whizz Kidz aim is to ensure that every disabled child has an opportunity to be something special…a kid.

There are an estimated 70,000 disabled children and young people in the UK waiting for a wheelchair that fits their young lives. That’s where we come in. Whizz-Kidz provides disabled children with the essential wheelchairs and other mobility equipment they need to lead fun and active childhoods.

Make a Wish

This charity grants magical wishes to children or young people aged from 3 to 17 living with a live-threatening illness.

React

React – Rapid Effective Assistance for Children with Potentially Terminal illness is a dynamic charity working to improve the quality of life for financially disadvantaged children with life-limiting illnesses living in the UK. Our work is unrivalled by any other organisation and our passion and belief that every child should have comfort, dignity, and the opportunity to participate in life as fully as possible is our driving force.

Children Today

Children Today is the charity that raises funds to provide specialised equipment for children and young people with disabilities throughout the UK. Our aim is to ensure that every disabled child and young person fulfils their potential and leads an active childhood. With your support we can achieve this.

The Boparan Charitable trust

This charity was set up by a young man who wanted to make a positive difference in the lives of disadvantaged children after being at the wheel of a car that caused significant injuries.

Post Pals

The most amazing charity that gives details of children that could really do with an extra smile. They encourage people to send children with long term illness or disability some post a small gift or an email to cheer them up. What I especially love is that they also include the siblings of the children on their books, which is unfortunately rare, and they are often the ones who suffer the most.

Post Pals Pillow Cases

Post Pals brightens the lives of seriously ill children, and this project supports their work. Ria and her team of volunteers design and print pillow cases and cushion covers for the Post Pals children and their brothers and sisters (if they are aged between 2 and 16). No charge is made for this. They also make custom pillow cases for a minimal fee which all goes towards Post Pals. They truly are amazing designs, everyone comments on Dominic's. I've ordered a few for birthday presents for friends' children too.

Wiggly Bags

Volunteers who make fun bags for wiggly lines (Hickman lines), bile bag covers. They make funky bags for a lot of the Post Pals Children.

Medic Alert

Advice, Information and Support

Contact a Family

This wonderful charity are the only UK-wide charity providing advice, information and support to the parents of all disabled children.

SWAN UK (Syndromes Without A Name)

SWAN UK is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. To find out more about the families they support please visit them on Facebook, follow them on Twitter or check out their YouTube channel

Muscular Dystrophy Campaign

The Muscular Dystrophy Campaign leads the fight against muscle disease by

funding world-class research
offering free information and advice about care and support
providing grants towards equipment
campaigning to raise awareness and bring about change

Special Kids in the UK

The charity was created by parents who have children with special needs and appreciate how important this type of contact and information is. They hope that Special Kids in the UK will help other families who have children with any kind of special need, to realise that they are not alone.

Parents of Disabled Children

Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

The forum was created by parents who have children with special needs and is run by parents so we are all in this together. With us you will realise you are not alone.

CrossRoad Care for Young Carers

Crossroads Care is Britain's leading provider of support for carers and the people they care for.

Child Growth Foundation

The Foundation is the UK's leading charity relating to children's growth.

This site contains information of benefit to parents with a child who has a diagnosed or suspected growth problem, to people who have a growth problem and their families, and to people and medical professionals with an interest.

Infant Reflux Disease

Information and support forums for topics ranging from reflux to tube feeding and gastric surgery.

Living Made Easy

If you are a parent or carer of a disabled child, or a healthcare professional looking for ideas, advice and information about daily living equipment from a source you can trust, you've come to the right place!

We at the Disabled Living Foundation do NOT sell any products but we CAN help you find the people that do! Living made easy for children was created by a team of occupational therapists.

Great Ormond Street Hospital's Children’s Charity

Great Ormond Street Hospital is full of remarkable children whose bravery touches everyone. With our supporters, we help keep the magic alive for thousands of children who need our help every year.

Medical Information

Orphanet

The portal for rare diseases and orphan drugs. You can search by disease name, gene symbol or code.

General Information

Complex Child E-Magazine

Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand. Articles are on a wide variety of topics ranging from basic information on medical conditions and treatments to advice on how to beat insurance company denials.