The appointment
Sometimes in life, no matter how hard you search, you don’t always get the answer you were looking for…
Patients Know Best (apparently)
Communication works for those who work at it. John Powell I decided to dedicate a separate post solely to our experience at the gastroenterology department in Great Ormond Street hospital, as I didn’t want the valuable information to be overshadowed by my detailed account of the appointment with the congenital myasthenia team. During our visit,
Sex, Drugs and Rock and Roll
You don’t think everything will change when you grown up, but it does. Here’s how I make sure I stay true to my rockstar within regardless.
Embracing the (dirty) added extras
Sometimes we make choices that we know are going to make our lives harder, but we make them regardless. Thankfully it’s a chronic human condition to want to take our intricate and complex lives and add a few more twists and turns and perhaps, if you’re like our family, a bit more dirt and chaos than fate originally intended you to have.
Granny slippers and chocolate
I don’t get unwell very often, I feel grotty an awful lot though. It’s a side effect of staying up too late, getting up too early and being surrounded by small humans leaking germs at me all the time. I don’t get can’t-get-up-out-of-bed sick, because I just can’t. At least I can’t Monday to Friday, because someone has to be vertical and vaguely compos mentis to look after Dominic.