When not parenting 3 kids (one in a wheelchair, one with Aspergers and one poor child stuck in the middle, all with an undiagnosed genetic condition), she can often be found trying to change the world, usually after the kids are in bed. Nocturnal megalomaniac. Rarely sleeps. Often Tired.
About Renata
When not parenting 3 kids (one in a wheelchair, one with Aspergers and one poor child stuck in the middle, all with an undiagnosed genetic condition), she can often be found trying to change the world, usually after the kids are in bed. Nocturnal megalomaniac. Rarely sleeps. Often Tired.
As I’ve just about recovered from the stress of trying to do a half decent job of putting together a video for Undiagnosed Children’s Day (representing over 2000 SWAN UK members, no pressure!), and because pizza hut assured me that they could feed the children, I have finally found a small sliver of time to make
I turned 40 today, and while my children slept, and the house was gloriously quiet, I decided to spend a bit of my birthday thinking about what my life has taught me so far. Here are the first 40 things that came to mind. Growing old is a privilege that we should never stop
You never change things by fighting the existing reality. To change something, build a new model that makes the existing model obsolete. – Richard Buckminster Fuller Almost a year. That’s how long it’s been since I have actually clicked on a button to publish my thoughts publicly. A lot can happen in almost a year,
Dear fathers of special needs children, I don’t get to meet you that often, you’re not a rare species so much as a precious one. As much as I’m conscious that there will be men who will take a very active part in their disabled child’s care, the fact is that the majority of people that
I wrote this post for one of my favourite charities Post Pals back in 2010. I still remember lying on my bed very late at night tapping the words into my phone as Dominic slept in his hospital bed next to me and my other two children slept miles away in their own beds at