The warrior parent. A much used label for a parent with a special needs child who fights the system until they are bruised and bloodied and then still gets up, spits out a loose tooth and goes in for a second round. Some parents wear this label as a badge of pride, and I completely
…There was more truth in that silence than any blog post or facebook update could ever have come close to. There was no way of parcelling it up, of telling the story, there was just a nothingness. No problem for me to solve, no battle for me to fight. And still I stayed silent.
Ok, so I’ll admit, I generally think that Facebook is a platform for us to all lie to each other and perhaps even to ourselves too. The funny incident with the duct tape and the baby sitter makes for a great update, but admit it, at the time it was just plain embarrassing, and perhaps a little unnerving. I think forcing ourselves to see the funny or ridiculous side of our human failings is a trait to be applauded though, all too often we take ourselves far too seriously, and if it takes a Facebook status to make us come up with another, more positive view of a situation, then it’s no bad thing, even if our sole purpose is merely to try and convince the world that we are funnier, smarter and have a better social life than any of our friends.
What can children like Dominic teach us about life?…. and why should we listen?… especially when we have to let go of our much trusted coping mechanism in order to hear what is being said
I have broken my prolonged silence (more on that soon) to share a very special video in honour of feeding tube awareness week. I would be forever grateful if you could find a minute to share it, as ultimately the more people that watch it, the further the message can travel.