A Plan (of sorts)
So another week has rolled by with not much happening. There does seem to be a downward trend with his aspirates, but chickens... counting... not. One thing that has been achieved is getting the consultant, dietician and ward manager to all sit down and agree a plan with me. Trust me, this is impressive. Principally that no one will touch the feed rate (for fear of making his gastric aspirates shoot up again) and they won't transfer us to the local... this isn't one I'm particularly confident about, but I did get them to agree that they couldn't see why I ...
Summer in the City
Dominic and I are currently languishing in Great Ormond Street after what should have been a relatively straightforward operation to give him a surgical jejunostomy. Unfortunately Dominic doesn't do straightforward and we are now in our fourth week of recovery with no one being able to predict how much longer it might take for him to be well enough to go home. Although I think that 'well' is a subjective term, as Dominic looks and acts as though he is on top form. He's happy, playing, cracking jokes and having a thoroughly wonderful time thank you very much. After all he ...
The irony
The year is drawing to an end
I've been wondering recently why it is so hard for me to come and fill in this journal now. Life for the most part is happy, I've moved house, it's somewhere far more suitable for us, with lots more space and a lovely border collie puppy (nicknamed Devil Dog) called Chloe. I've been in a relationship with a wonderful guy for nearly a year, the children are happy and secure, Dominic is just the happiest most good natured child I've ever met, I genuinely count my blessings every day. But I find it desperately hard to come here and talk about ...